Policy must be put in place. We've been hearing about this White Paper [into disabilities] for years. We hear talk that legislation is on the table but we don't want it on the table, we want it on the books. |
The basic things that these children need are expensive. They need diapers daily and this isn't like when a normal baby would grow out of pampers in less than a year. This is a lifelong commitment. |
We have been holding on. You want to go through the system but my daughter is 15 now and let me tell you, when you talk about National Insurance, the kids cannot get anything until they are 16. |