It's not surprising that parents have little time to focus on the future. But if they don't, the consequences can be life altering...It's not about lifetime care, but about quality of life. |
Twenty years ago that wasn't the case, but it is now. |
You don't know what questions to ask when you start. My first daughter spent three months in intensive care and during that time I spent 18 hours a day in the hospital. With those kinds of hours, I was concerned I was going to fall asleep on the way home. I was extremely motivated to do something. |