Going to McDonald's, it's amazing how many people look at Rachel and then turn away and won't even look at her, won't hold the door for us. |
It was a rough few weeks. |
It's amazing what modern medicine has done. |
It's been such an amazing learning experience, living with Rachel. She enjoys her family and we learn so much from her. |
It's really drawn us back to what's important. |
The families have found support. We have participants (online) from all over the world. The biggest thing we have found is the misinformation that's given to families. |
They're just wonderful with their sister. They dress her up, play with her. Rachel just loves them. |
We really have no idea what her prognosis is. Every day is another gift. Some of it depends on what's God's plan for them. |
We really wanted this weekend to be about the families and supporting each other, and putting faces to the names we see on e-mail. |
Without it, I don't know where we would be. Rachel's care is very intense. |